About the AXIS Registry
What is a Patient Registry?
Think of a patient registry as a community diary where people with the same condition share their health stories by answering surveys and using digital health tools. By tracking your symptoms, treatments, and how you're doing over time, researchers can spot patterns, discover what works best, and ultimately help improve care for everyone living with your condition. You're not just filling out surveys—you're contributing to real discoveries that could change lives!
The AXIS Autoimmune Neurology Registry
The AXIS Registry was created because too little is known about autoimmune diseases that affect the brain, spinal cord, and nerves. Together, we can change that.
At the moment we are focusing on Myasthenia Gravis (MG).
In the future we will welcome people with other autoimmune neurology conditions such as Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Neuromyelitis Optica Spectrum Disorder (NMOSD), and Autoimmune Encephalitis (AE).
Expert Guidance
The AXIS Registry is supported by an independent Scientific Committee of leading U.S. experts who help ensure the registry is clinically relevant, patient-focused and structured to generate high-value real world evidence in Myasthenia Gravis treatment and care. Members of the committee are:
Dr. Richard Nowak (Committee Chair), Neurologist, Professor, and Director of the Myasthenia Gravis Clinic at Yale University.
Dr. Srikanth Muppidi, Neurologist and Clinical Professor of Neurology and Neurological Sciences at Stanford University School of Medicine.
Dr. Neelam Goyal, Neurologist and Clinical Professor of Neurology and Neurological Sciences at Stanford University School of Medicine.
Dr. Gary Cutter, Professor Emeritus of Biostatistics at the University of Alabama at Birmingham School of Public Health, and Registry expert
Why join?
AXIS helps people with Myasthenia Gravis (MG) turn their experience into research that can improve understanding, care, and future treatments—so progress is shaped by patients, not just clinic visits.
By joining you are:
Making an impact: Your voice supports MG research and future advances.
Adding to a bigger picture: Helps researchers learn from many different MG experiences.
Staying informed: You may receive updates about research opportunities and possible studies you could be eligible for.
Easily participating: Online, on your schedule.
How it works
1) Enroll online with a one-time questionnaire: You’ll answer a few questions about you and your MG. To keep the Registry accurate, we’ll ask you to confirm your MG diagnosis, which may include uploading a photo or PDF of a medical record, test result, or prescription. If you don’t have documents ready, you can come back later - your responses can be saved.
2) Quick monthly check-ins: After enrolling, you’ll receive short monthly check-ins to track your symptoms and day-to-day experience over time.
3) Incentives: We value your time - incentives are available for eligible participants who complete Registry activities (details provided during participation).